Sunday, February 3, 2013

Andrew Update

Andrew has been having tremors multiple times daily. Some tremors are gentle--involving just his head, and others are forceful and abrupt--involving his head, shoulders, and arms. These tremors began July 2012 and have been progressively getting worse.

It has taken a long time to finally begin the diagnosis process. Andrew was to have this 8-hour EEG done, but illness had caused it to be rescheduled  He was also to have an MRI done of his brain, but that too had to be rescheduled due to illness. (He must be healthy for two weeks in order to be sedated for the MRI.) Thus, his new date for the MRI is March 18th.

Since he doesn't seem to be staying well for very long, beginning in March, we may have to quarantine him--no visiting stores, the library...until his appointment is over. (When the MRI is rescheduled, it takes 2-4 months to get a new appointment, and this needs to be done, as they will be looking for a tumor.)

But for now, we have one test completed. On Friday morning, Derek woke Andrew up at 1:30 a.m. and played with him until 6 a.m. when I woke up. Andrew then spent the rest of the day with me.

Since only one parent could be in the room, Derek went to bed at 6 a.m., and Andrew and I had a "date day" at the hospital.

Several people were praying for Andrew, and he was able to stay on the bed for 8 hours (a real concern of the nurses). He and I watched movies, cuddled, read books, played with trains and cars, played peek-a-boo with toys, etc.

I knew beyond a shadow of a doubt that we were being prayed for, because Andrew didn't complain about the situation. His "hat" was itchy, but he endured it. It helped that he had worn his winter hat to the hospital, so I wore his hat the whole day. (His hat looks like his new "hat" with sides that go down the side of his face and attach underneath his neck.) So, momma wore Andrew's hat and Andrew got to wear a "new hat". =)

I watched him throughout the day. I kept marveling over the fact that he is our son. What a gift!

My love for him just kept growing and growing. We snuggled. We kissed. We hugged. We played. And then, we snuggled and kissed some more. It was so precious! May the memory of that special time remain for a long time!

Here's Andrew with his "hat" and the "sock" behind his head to keep all the electrodes and wires from coming loose:



Trying to keep busy: 


We are so blessed to call this little guy our son! We are so thankful we are able to walk through this time with him.

Thank you IMMENSELY for all who prayed for us! Andrew was so peaceful. I know people were praying.

Now, we await the results....

1 comment:

Jennifer Alvarado said...

Praying God's will be done and if it is God's will for a diagnosis to be discovered. Love you all. Glad that test is over!